Understanding Multiple Sclerosis and the Meaning Behind the Awareness Ribbon
Multiple sclerosis (MS) is a chronic autoimmune disease that affects the central nervous system. It damages the myelin sheath that protects nerve fibers, causing communication problems between the brain and the rest of the body. Symptoms include vision loss, pain, fatigue, impaired coordination, and more. There is currently no cure for multiple sclerosis, but treatments and therapies can help manage symptoms and slow disease progression.
The History and Meaning of the MS Awareness Ribbon
The MS awareness ribbon was created to promote understanding of multiple sclerosis and raise funds for research. The ribbon's unique design features an orange background with the letters M and S overlapping in white. Orange was chosen to represent the human brain and central nervous system, while the white letters signify absence or loss of myelin in nerve fibers.
The overlapping letters also symbolize the unpredictable nature of MS symptoms and how they can accumulate over time. Some possible interpretations are "multiple scars," referencing the scars left on nerve cells, or "ms," an abbreviation for the disease name.
Who Started the MS Awareness Ribbon?
Several individuals and groups claim involvement in creating the first MS awareness ribbon. It likely emerged sometime in the 1980s or 90s through collective efforts to boost MS visibility. Some cite Michigan resident James T. Lubelski who handcrafted ceramic orange ribbons to raise money after his wife’s diagnosis. Others recognize the National Multiple Sclerosis Society (NMSS) for advancing the symbol nationally.
Regardless of its exact origin, the MS awareness ribbon today represents unity, hope, and determination in finding a cure. All proceeds from official NMSS ribbons directly fund research and programs to improve quality of life.
When and Why Do People Wear the MS Ribbon?
People wear the MS awareness ribbon all year round, but especially in March during MS Awareness Month. This designated time spreads understanding, confronts stereotypes, and connects those impacted. Major days for displaying ribbons are March 6, Registered MS Nurses Day, and March 20-26, MS Awareness Week.
Goals and Outcomes of Wearing the MS Ribbon
Wearing an MS ribbon increases public knowledge of the disease. With MS being an invisible illness, outward symbols inform others of debilitating symptoms happening internally. Greater awareness leads to early intervention, better treatment access, increased funding, and an empathetic public attitude.
The MS ribbon also makes invisible people visible. For every visible ribbon worn, thousands more live with MS silently. Ribbons build community and reduce feelings of isolation through shared experience. They empower those diagnosed to advocate for themselves while honoring others who cannot.
How People Participate in MS Awareness Month
People participate in MS Awareness Month at many levels of involvement. Some organize fundraisers donating proceeds from special events or products. Others volunteer with the NMSS to run local education campaigns. Many also participate by simply wearing a ribbon and sharing #MSAwarenessMonth. Regardless of one’s role, all participation works toward the common goal of a world free of MS.
Multiple Sclerosis FAQs
What are common multiple sclerosis symptoms?
Common MS symptoms include fatigue, numbness/tingling, walking/balance/coordination issues, bladder problems, bowel problems, vision changes, dizziness, spasticity, pain, and cognitive changes. However, symptoms manifest unpredictably between people and fluctuate in severity.
Who gets diagnosed with multiple sclerosis?
Most people receive an MS diagnosis between the ages of 20 and 50, but children and older adults can also develop it. MS primarily impacts women over men. Increased risk also exists for family members of those diagnosed. Other risk factors being investigated include low vitamin D, smoking, environment, obesity, and viruses.
Is multiple sclerosis fatal?
MS itself does not directly cause death in most cases. The average life expectancy is 5-10 years lower for people with MS than the general population. Suicide risk is higher as well. However, recent decades show marked improvement in prognosis thanks to expanding treatment options that better manage symptoms.
Can you prevent multiple sclerosis?
No definitive way exists currently to prevent MS, but steps can be taken to lower risk. Maintaining a healthy lifestyle through diet, exercise, stress management, and avoiding smoking/excess alcohol may help. Despite best efforts though, MS can happen randomly so focusing energy on symptom management is most beneficial.
Is multiple sclerosis considered a disability?
Yes, multiple sclerosis is considered a physical disability. Symptoms like mobility impairment, dexterity issues, pain, fatigue, visual changes, and speech difficulties can interfere with daily function or work. Disability status and reasonable accommodations help offset challenges for independent living and equal employment.
Supporting the MS Cause Year-Round
While MS Awareness Month provides focal visibility for the disease, supporting the MS cause all year cultivates greater progress. Ongoing awareness and funding drives critical research to stop MS progression, restore function, and end MS forever. Everyone can help accelerate solutions through continued participation.
Advocacy Opportunities
Amplifying voices within the MS movement advances policies and legislation for increased research and access. Contacting government officials, sharing personal stories, and voting underscore the widespread impact of MS. Grassroots advocacy brings change through collective action, moving closer to a world free of MS.
Fundraising and Donating
Donations fund cutting-edge research, programs, and services that radically improve MS care. Participating in awareness and fundraising events like Walk MS, Bike MS, MS Yoga Day, galas, DIY fundraisers and more make meaningful differences. Supporting sponsors who give proceeds also helps the MS cause outside of designated campaigns.
Volunteering
Volunteering with the National MS Society opens doors to specialized roles that match one’s skills and needs. Opportunities include peer connections, support groups, education programs, activism, administration, event coordination and more. Volunteering builds community while empowering people to pursue improvements most meaningful to them.
Marching forth past MS Awareness Month keeps momentum thriving all year. The ribbon waves as a reminder - we stand together until answers are found, cures are made, and support is available for all impacted by multiple sclerosis.
Disclaimer: This article is for informational purposes only and does not constitute medical advice. Always consult with a healthcare professional before starting any new treatment regimen.
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